What do we owe our future children? How do advances in biomedical science bear on these obligations? How do capitalist incentives distort their execution? Advances in biotechnologies for human enhancement and designer babies appear to offer us new hope to control the fragility of human living. Some philosophers have argued that we have a moral imperative to use them, especially to eliminate disabilities.
Elyse Purcell offers an opposing view, one guided by existential insights and Marxist reflections. Engineering Perfection: Solidarity, Disability, and Well-being explores the effect global capitalism may have on the selection of traits for our future children and how the commercialization of these technologies may lead to the elimination of bodily diversity. Although philosophers have addressed the possible widening between the haves and have-nots, this book considers the role oppression and exploitation may play in enhancing bodies for profit. As a challenge to the global economy of debility, Purcell proposes the Solidarity view, which embraces human vulnerability and embodied difference. By reflecting on facets of the human condition, the Solidarity view challenges us to reject our conception of the good life as human perfection, and instead reconceive of the good as one’s self-realization through the interdependent mutual recognition and co-belonging with others.
Elyse Purcell is assistant professor of philosophy at the State University of New York College at Oneonta.
Introduction: Genetic Technologies and My Existential Journey
Chapter 1: Solidarity and the Five Faces of Vulnerability
Chapter 2: Facing Aging and Illness: Oppression and the Exploitable Body
Chapter 3: Facing Death: Invulnerability and the “Cure”
Chapter 4: Facing Misfortune: Perfection, Designer Babies, and Imaginary Appetites
Chapter 5: Facing Suffering: Capitalism, QALY, and Well-being
"In her monograph, Engineering Perfection: Solidarity, Disability, and Well‐being, Elyse Purcell weaves compelling stories that center 'imperfection' with cogent philosophical insights drawing on feminist disability studies and standpoint epistemology. Purcell roots her analysis in a solidarity view that reimagines Iris Marion Young’s five faces of oppression as faces of vulnerability. Engineering Perfection showcases an important critique of transhumanism and its late capitalist ideology of genetic enhancement."
"A lucid and enlightening exploration of the value of our inescapable vulnerabilities, of the ways in which social-economic processes push us toward the pathological perfectionism of genetic engineering, and of how a saner society can be created through social solidarity by means of respect for bodily difference, relational authenticity, empowered self-direction, and mutual recognition. A must read!"
"Elyse Purcell’s Engineering Perfection: Solidarity, Disability, and Well-Being is a fearless, clear, and exemplary work of moral philosophy. Drawing on what Purcell calls 'the Solidarity view,' the book effortlessly weaves personal narrative and reflection on the experiences of infertility, adoption, and disability with a careful consideration of the literature covering genetic technology, disability studies, Marxism, ethics, and virtue theory. The book is a careful explication of life’s vulnerabilities—illness, aging, death, misfortune, and suffering—and the way capitalism exploits those vulnerabilities. Hopefully, Purcell suggests that a model for social transformation will depend on the virtues of respect for bodily diversity, relational authenticity, empowered self-direction, and mutual recognition. This important and expansive book will be of benefit to teachers and students across many disciplines and to the general reader who desires to work toward the well-being of all in society."
"Elyse Purcell’s Engineering Perfection: Solidarity, Disability, and Wellbeing takes readers on a riveting journey that explores the promise and perils of biotechnology applications. While genetic engineering tools do many things, recent innovations brought designer babies from thought-experiment to reality. This book is a must-read for those grappling with how best to apply these technologies to future generations—our children."