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Living with HIV in Post-Crisis Times

Beyond the Endgame

Edited by David A.B. Murray - Contributions by Adia Benton; Janice Graham; Wesam Hassan; Jallicia Jolly; Robert Lorway; David A.B. Murray; Claudia E. Ordóñez; Pamela Runestad; Vaibhav Saria; Stephen L. Schensul; Oumy Thiongane and Colleen Walsh Lang

Over the past decade, effective prevention and treatment policies have resulted in global health organizations claiming that the end of the HIV/AIDS crisis is near and that HIV/AIDS is now a chronic but manageable disease. These proclamations have been accompanied by stagnant or decreasing public interest in and financial support for people living with HIV and the organizations that support them, minimizing significant global disparities in the management and control of the HIV pandemic. The contributors to this edited collection explore how diverse communities of people living with HIV (PLHIV) and organizations that support them are navigating physical, social, political, and economic challenges during these so-called “post-crisis” times.

  • Details
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  • Author
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  • TOC
  • TOC
  • Reviews
  • Reviews
  • Features
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Lexington Books
Pages: 254 • Trim: 6¼ x 9
978-1-66690-148-1 • Hardback • August 2021 • $117.00 • (£90.00)
978-1-66690-149-8 • eBook • August 2021 • $45.00 • (£35.00)
Series: Anthropology of Well-Being: Individual, Community, Society
Subjects: Social Science / Disease & Health Issues, Social Science / Anthropology / Medical, Social Science / Social Classes & Economic Disparity, Social Science / Anthropology / Cultural

David A.B. Murray is professor of anthropology and sexuality studies at York University.

Part I: Fantastic Conceits and How to Mind Them: Managing PLHIV in ‘Post-Crisis’ Times

Chapter 1: Forty Years of AIDS: Fatigue, Failure, and Fantasies

Chapter 2: Governing HIV-Positive Subjectivities in Post-2011 Egypt

Chapter 3: Disclosure and Responsibility: Children Living with HIV in Uganda

Chapter 4: Coordination of Medical Pluralism in Public HIV Health Care in South Africa:

Shifting to an Alliance Framework with Traditional Health Practitioners

Chapter 5: Being HIV Positive Healthy Enough in West Africa for an Ebola Clinical Trial?

Part II: Always Never Normal: Positive Living in ‘Post-Crisis’ Times

Chapter 6: “I can live a normal life”: Challenging Perceptions of HIV and (Re)productive Life in Japan

Chapter 7: Opting Out: Aging Gays, HIV/AIDS and the Bio-Politics of Queer Viral Time

Chapter 8: From “at Risk” to Interdependent: The Erotic Life Worlds of HIV+ Jamaican Women

Chapter 9: Life beyond survival: HIV Positive Men on ART Treatment who Consume Alcohol in Urban India

Conclusion: Remembering HIV in the Era of Eradication: Critical Nostalgia, Infrastructures of Accountability, and the Fate of Viral Socialities

Afterword: Beyond AIDS

This edited collection of ethnographic research reports from 11 contributors around the globe makes the case that biomedical treatment to prolong life and reduce transmission of HIV has not solved the HIV/AIDS crisis. Murray includes case studies from Egypt, Uganda, India, Africa, Japan, Jamaica, and Canada that discuss numerous problems: lack of access to resources; drug shortages and limited distribution; treatment non-compliance; stigma and discrimination; dwindling financial support for fewer programs; staff shortages; inadequate follow-up; aging patients and long-term toxic drug side effects; increased alcohol use; girls and women as victims of sexual violence and/or abandonment/widowhood; food insecurity and need for nutritional counseling; and problems of poor migrant populations such as unstable housing, underemployment, and the like. Contributing authors also share information on some positive efforts and pilot programs: women-centered networks and "Mentor Moms" in Jamaica; Ugandan residential treatment and a school for children with advanced HIV infection who are eventually reintegrated into home communities; and a Canadian/West African EBOLA vaccine clinical trial conducted among HIV+ immunocompromised individuals. The chapters include extensive notes and references[.] Recommended. Upper-division undergraduates. Graduate students, faculty, and professionals.


— Choice Reviews


As the world enters the fifth decade of the HIV/AIDS pandemic, this volume offers an essential reminder that HIV is not over, particularly for the many activist and patient communities who risk being further marginalized by such discourses. These varied and ethnographically rich chapters provide a powerful record of where, how, and for whom HIV persists—and at what cost.


— Nora Kenworthy, University of Washington Bothell; author of Mistreated: The Political Consequences of the Fight Against AIDS in Lesotho


Anyone who thinks the end of HIV/AIDS has arrived needs to read this book. Through rich ethnographies of the response to HIV in countries around the globe, this volume forcefully demonstrates the profound limitation of Global North assumptions about the normalization of HIV. The book is a potent reminder of the ongoing struggles faced by communities of people living with HIV, the limitations of biomedical ‘solutions’ to HIV/AIDS, and the social, political, and economic inequalities in the global HIV/AIDS response. It makes an indelible contribution to critical social science understandings of HIV in our present.


— Eric Mykhalovskiy, York University


This insightful, moving, and often gripping edited volume makes a critical intervention into the hegemonic biomedical framing of HIV as a chronic, manageable condition. The contributors elegantly demonstrate that, from India to Egypt to Japan, access to antiretroviral treatment and appropriate care is often fragile and uneven, that lives continue to be cut tragically short by AIDS-related illnesses, and that health bureaucracies themselves are often significant barriers to antiretroviral adherence and effective self-care. The volume showcases the work of talented new researchers who are investigating cutting-edge topics, such as how HIV disclosure is managed and experienced among children, how governments deploy claims about having discovered a ‘cure’ in order to whip up nationalist sentiments, and how people living with HIV endure a kind of erasure when their experiences do not align with current HIV optimism. The contributors think deeply about what it means to live with a ‘chronic’ illness, showing that chronicity is not the unspooling of flat, uneventful time, but instead is often experienced as unpredictable and punctuated by near-fatal crises. Also notable in this collection is the rich analysis of alternative forms of community, often forged by their members to provide the experiential and embodied knowledge, support, and care that formal, technocratic health services fail to deliver. Bookended by an incisive Introduction and by two powerful and thought-provoking concluding chapters, this collection makes a highly significant contribution to the anthropology of HIV and AIDS.


— Holly Wardlow, University of Toronto


11/9/21, New Books Network: Murray appeared on this podcast episode to talk about the book.

Link: https://newbooksnetwork.com/living-with-hiv-in-post-crisis-times



Living with HIV in Post-Crisis Times

Beyond the Endgame

Cover Image
Hardback
eBook
Summary
Summary
  • Over the past decade, effective prevention and treatment policies have resulted in global health organizations claiming that the end of the HIV/AIDS crisis is near and that HIV/AIDS is now a chronic but manageable disease. These proclamations have been accompanied by stagnant or decreasing public interest in and financial support for people living with HIV and the organizations that support them, minimizing significant global disparities in the management and control of the HIV pandemic. The contributors to this edited collection explore how diverse communities of people living with HIV (PLHIV) and organizations that support them are navigating physical, social, political, and economic challenges during these so-called “post-crisis” times.

Details
Details
  • Lexington Books
    Pages: 254 • Trim: 6¼ x 9
    978-1-66690-148-1 • Hardback • August 2021 • $117.00 • (£90.00)
    978-1-66690-149-8 • eBook • August 2021 • $45.00 • (£35.00)
    Series: Anthropology of Well-Being: Individual, Community, Society
    Subjects: Social Science / Disease & Health Issues, Social Science / Anthropology / Medical, Social Science / Social Classes & Economic Disparity, Social Science / Anthropology / Cultural
Author
Author
  • David A.B. Murray is professor of anthropology and sexuality studies at York University.

Table of Contents
Table of Contents
  • Part I: Fantastic Conceits and How to Mind Them: Managing PLHIV in ‘Post-Crisis’ Times

    Chapter 1: Forty Years of AIDS: Fatigue, Failure, and Fantasies

    Chapter 2: Governing HIV-Positive Subjectivities in Post-2011 Egypt

    Chapter 3: Disclosure and Responsibility: Children Living with HIV in Uganda

    Chapter 4: Coordination of Medical Pluralism in Public HIV Health Care in South Africa:

    Shifting to an Alliance Framework with Traditional Health Practitioners

    Chapter 5: Being HIV Positive Healthy Enough in West Africa for an Ebola Clinical Trial?

    Part II: Always Never Normal: Positive Living in ‘Post-Crisis’ Times

    Chapter 6: “I can live a normal life”: Challenging Perceptions of HIV and (Re)productive Life in Japan

    Chapter 7: Opting Out: Aging Gays, HIV/AIDS and the Bio-Politics of Queer Viral Time

    Chapter 8: From “at Risk” to Interdependent: The Erotic Life Worlds of HIV+ Jamaican Women

    Chapter 9: Life beyond survival: HIV Positive Men on ART Treatment who Consume Alcohol in Urban India

    Conclusion: Remembering HIV in the Era of Eradication: Critical Nostalgia, Infrastructures of Accountability, and the Fate of Viral Socialities

    Afterword: Beyond AIDS

Reviews
Reviews
  • This edited collection of ethnographic research reports from 11 contributors around the globe makes the case that biomedical treatment to prolong life and reduce transmission of HIV has not solved the HIV/AIDS crisis. Murray includes case studies from Egypt, Uganda, India, Africa, Japan, Jamaica, and Canada that discuss numerous problems: lack of access to resources; drug shortages and limited distribution; treatment non-compliance; stigma and discrimination; dwindling financial support for fewer programs; staff shortages; inadequate follow-up; aging patients and long-term toxic drug side effects; increased alcohol use; girls and women as victims of sexual violence and/or abandonment/widowhood; food insecurity and need for nutritional counseling; and problems of poor migrant populations such as unstable housing, underemployment, and the like. Contributing authors also share information on some positive efforts and pilot programs: women-centered networks and "Mentor Moms" in Jamaica; Ugandan residential treatment and a school for children with advanced HIV infection who are eventually reintegrated into home communities; and a Canadian/West African EBOLA vaccine clinical trial conducted among HIV+ immunocompromised individuals. The chapters include extensive notes and references[.] Recommended. Upper-division undergraduates. Graduate students, faculty, and professionals.


    — Choice Reviews


    As the world enters the fifth decade of the HIV/AIDS pandemic, this volume offers an essential reminder that HIV is not over, particularly for the many activist and patient communities who risk being further marginalized by such discourses. These varied and ethnographically rich chapters provide a powerful record of where, how, and for whom HIV persists—and at what cost.


    — Nora Kenworthy, University of Washington Bothell; author of Mistreated: The Political Consequences of the Fight Against AIDS in Lesotho


    Anyone who thinks the end of HIV/AIDS has arrived needs to read this book. Through rich ethnographies of the response to HIV in countries around the globe, this volume forcefully demonstrates the profound limitation of Global North assumptions about the normalization of HIV. The book is a potent reminder of the ongoing struggles faced by communities of people living with HIV, the limitations of biomedical ‘solutions’ to HIV/AIDS, and the social, political, and economic inequalities in the global HIV/AIDS response. It makes an indelible contribution to critical social science understandings of HIV in our present.


    — Eric Mykhalovskiy, York University


    This insightful, moving, and often gripping edited volume makes a critical intervention into the hegemonic biomedical framing of HIV as a chronic, manageable condition. The contributors elegantly demonstrate that, from India to Egypt to Japan, access to antiretroviral treatment and appropriate care is often fragile and uneven, that lives continue to be cut tragically short by AIDS-related illnesses, and that health bureaucracies themselves are often significant barriers to antiretroviral adherence and effective self-care. The volume showcases the work of talented new researchers who are investigating cutting-edge topics, such as how HIV disclosure is managed and experienced among children, how governments deploy claims about having discovered a ‘cure’ in order to whip up nationalist sentiments, and how people living with HIV endure a kind of erasure when their experiences do not align with current HIV optimism. The contributors think deeply about what it means to live with a ‘chronic’ illness, showing that chronicity is not the unspooling of flat, uneventful time, but instead is often experienced as unpredictable and punctuated by near-fatal crises. Also notable in this collection is the rich analysis of alternative forms of community, often forged by their members to provide the experiential and embodied knowledge, support, and care that formal, technocratic health services fail to deliver. Bookended by an incisive Introduction and by two powerful and thought-provoking concluding chapters, this collection makes a highly significant contribution to the anthropology of HIV and AIDS.


    — Holly Wardlow, University of Toronto


Features
Features
  • 11/9/21, New Books Network: Murray appeared on this podcast episode to talk about the book.

    Link: https://newbooksnetwork.com/living-with-hiv-in-post-crisis-times



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