""What If It's Not Alzheimer's? is a must-read for anyone dealing with a diagnosis of dementia, especially FTD. The practical information, the resources, and the depth of understanding reflected in this book provide a comprehensive reference to guide and accompany a person throughout the journey.” —Susan L.-J. Dickinson, MS, CGC, executive director of the Association for Frontotemporal Degeneration “I am certain that no other lay writers have been more dedicated to updating the vital information to help caregivers navigate the emotionally trying, ever-evolving landscape of early-onset, non-Alzheimer's dementia. These caregivers remain underserved, highlighting the importance of this book and of finding each other.”—Dr. Tiffany Chow, behavioral neurologist, author of The Memory Clinic Praise for the first edition:“[A]n updated handbook packed from cover to cover with tips and information for caregivers and sufferers alike." -- Bookwatch “[D]eals with a topic about which little has been written. ...an excellent resource....makes an important contribution to the family caregiving literature because of the biomedical and professional insight it offers into an important but rarely discussed type of dementia.”-- Canadian Journal on Aging
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What If It’s Not Alzheimer’s? has been a resource that I recommend to the families of my patients with frontotemporal degenerative disorders since the book first became available in 2003. Now, with this fourth edition that has been extensively updated, the book has only become more informative, more comprehensive and more accessible. Covering diverse but critical information about FTD, whether it is about managing caregiver stress, explaining genetic risks or laying out a guess about what the future management challenges will be, this book is an invaluable aid to families on the journey with FTD." - David S. Knopman, MD, Consultant in Neurology, Mayo Clinic
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"A diagnosis of a degenerative brain disease is devastating to individuals and their families and can be scary, overwhelming and burdening. This book packs all of the critical information, ideas and resources into one place saving caregivers valuable time and energy. It is comprehensive, insightful and reliable due to the collective wealth of knowledge from its contributors. It can be an essential guide for everyone dealing with FTD, including health professionals." - Dr. Irene Litvan, Neurologist and Professor of Neurosciences, UC San Diego
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