Although the public most often associates dementia with Alzheimer’s disease, the medical profession continues to advance distinctions of various types of “other” dementias. What If It’s Not Alzheimer’s? is the first and remains the only comprehensive guide dealing with frontotemporal degeneration (FTD), the most common form of dementia for people under 60 years of age. The contributors are either specialists in their fields or have exceptional hands-on experience with FTD sufferers. Beginning with a focus on the medical facts, the first part defines and explores FTD as an illness distinct from Alzheimer's disease. Also considered are clinical and medical care issues and practices, as well as such topics as finding a medical team, palliative approaches to managing care and rehabilitation interventions. The next section on managing care examines the daily care routine including exercise, socialization, adapting the home environment, and behavioral issues along with end-of-life concerns. In the following section on caregiver resources, the contributors identify professional and government assistance programs along with private and community resources and legal options. The final section focuses on the caregiver, in particular the need for respite, holistic health practices and the challenge of managing emotions. This new, completely revised edition continues to follow worldwide collaboration in research and provides the most current medical information available including understanding of the different classifications of FTD, and more clarity regarding the role of genetics. Additionally, essays written by people living with the disease provide moving, first-hand experiences. The wealth of information offered in these pages will help both healthcare professionals and caregivers of someone suffering from frontotemporal degeneration.
Gary Radin (Mullica Hill, NJ) and his mother, Lisa Radin (Las Vegas, NV), provided complete in-home care for father and husband Neil Radin over a four-year period. In 1998, they established the Neil L. Radin Caregivers Relief Foundation. They are both support-group facilitators and have been involved in planning and coordinating FTD caregiver conferences.
What If It’s Not Alzheimer’s? has been a resource that I recommend to the families of my patients with frontotemporal degenerative disorders since the book first became available in 2003. Now, with this fourth edition that has been extensively updated, the book has only become more informative, more comprehensive and more accessible. Covering diverse but critical information about FTD, whether it is about managing caregiver stress, explaining genetic risks or laying out a guess about what the future management challenges will be, this book is an invaluable aid to families on the journey with FTD." - David S. Knopman, MD, Consultant in Neurology, Mayo Clinic
"A diagnosis of a degenerative brain disease is devastating to individuals and their families and can be scary, overwhelming and burdening. This book packs all of the critical information, ideas and resources into one place saving caregivers valuable time and energy. It is comprehensive, insightful and reliable due to the collective wealth of knowledge from its contributors. It can be an essential guide for everyone dealing with FTD, including health professionals." - Dr. Irene Litvan, Neurologist and Professor of Neurosciences, UC San Diego