Lexington Books
Pages: 208
•
Trim: 6 x 9
978-0-7391-4725-2 • Hardback • July 2011 • $97.00 • (£65.00)
978-0-7391-8339-7 • Paperback • April 2013 • $46.99 • (£31.95)
978-0-7391-4727-6 • eBook • July 2011 • $44.50 • (£29.95)
Ralph V. Katz is professor and chair, Department of Epidemiology and Health Promotion at the New York University College of Dentistry.
Rueben C. Warren is professor and director of the National Center for Bioethics in Research and Health Care at Tuskegee University.
Chapter 1 Preface
Chapter 2 Foreword
Chapter 3 Information Stream of the 'Legacy' of the USPHS Syphilis Study at Tuskegee: 1972-2010
Chapter 4 From Exlusion to Inclusion: Participation in Biomedical Research and the Legacy of the U.S. Public Health Syphilis Study at Tuskegee
Chapter 5 Of Thanks and Forgiveness
Chapter 6 The "Tuskegee" Syphilis Study as a "Site of Memory"
Chapter 7 Tuskegee Legacy: The Role of the Social Determinants of Health
Chapter 8 Toward the Ethical Conduct of Science and a Socially Just World
Chapter 9 The Southern Male Placebo Study: the good, the bad and the ugly
Chapter 10 Intent: the Key that Unlocks the Search for the Legacy of the USPHS Syphilis Study at Tuskegee
Chapter 11 The Untold Story of the Legacy of the Tuskegee Study of Untreated Syphilis in the Negro Male...Or, Is the Legacy of Tuskegee Affirmative Action for White Researchers?
Chapter 12 Legacy of Tuskegee
Chapter 13 Racial Conspiracy and Research
Chapter 14 African Americans and the Broader Legacy of Experience with the American Health Care Community: Parasites, Locusts and Scavengers
Chapter 15 The USPHS Syphilis Study at Tuskegee: Rethinking the Horizons of Beneficence
Chapter 16 Medicine, Research, and Socio-cultural History: Reciprocal Relationships
Chapter 17 Healing the Sin Sick Soul: Reflections on the Syphilis Study
Chapter 18 Appendix A. List of 7 Key Tuskegee Legacy Project articles
Chapter 19 Appendix B. Biosketches of Contributors
This collection of essays looks at the historical and bioethical issues stemming from the USPHS Syphilis Study at Tuskegee, especially the legacy generated by the 40-year abuse of African American subjects in the study. In the excellent Examining Tuskegee (CH, May'10, 47-5055), Susan Reverby discussed how the long-held assumptions of the legacy have proven problematic. Here, contributors examine the evidence for two assumptions of the legacy: African Americans are less willing than whites to participate in biomedical research studies, and relative willingness to participate is associated with an awareness of the USPHS study at Tuskegee. The conclusion of the editors is that neither assumption is supported by the evidence of numerous studies of the past decade. That is just the beginning, however; the 14 essays that make up the body of the book deal, often in personal ways, with the variety of legacies that exist in the troubled landscape of racial relations, biomedicine, and the cultural realities of American life. The Tuskegee experience remains relevant and rightfully disturbing in so many ways, even if the assumptions of the original legacy have faded. Summing Up: Recommended. Academic and professional readers, all levels.
— CHOICE
The book's essays testify to the varied legacies of the USPHS Syphilis Study at Tuskegee, viewed through the authors' very personal prisms. In the years since the story broke in 1972 and President Clinton apologized to the survivors of the infamous government-led study in 1997, new legacies have been identified and older ones proven invalid. The essayists, from diverse disciplines and backgrounds, provide unique perspectives on the evolving legacy of the Tuskegee Syphilis Experiment.
— Joan Echtenkamp Klein, Biomedical Librarian, University of Virginia Health System
A commendable collection of facts and opinions... woven into the fabric of explanations to answer the many unsettling questions about the USPHS Syphilis Study in Tuskegee and Macon County, Alabama. It is very important that we continue to seek answers and attempt to bring good from an evil act that was imposed on loving human beings in the name of medical research.
— Lillie Head, daughter of USPHS Syphilis Study participant
Addressing the social implications, public health impact and attitudinal sequellae of the reprehensible US Public Health Service Syphilis Study, this volume is a powerful, insightful, and scholarly assessment of these egregious events. The notable contributors underscore the fact that continued vigilance in support both of fully informed consent and of the need to redress contemporary healthcare disparities are obviated neither by the welcomed presidential apology nor by the establishment of the National Center for Bioethics at Tuskegee University. Continued bioethics research funding and training of scholars and professional practitioners in the field remain vitally necessary. Moreover, the struggle to establish enforceable policies that proactively mitigate and prevent illness and protect the health and healthcare entitlements of ethnic minorities and impoverished communities, not only in the United States but also globally, should and must vigorously continue. Only then can we legitimately be assured that 'never again' will such atrocities occur.
— Gilbert Rochon, President, Tuskegee University